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Cystic Fibrosis Program

 

The Pediatric Cystic Fibrosis Program at Mattel Children's Hospital UCLA offers comprehensive clinical care, research and educational support for infants, children and adolescents with cystic fibrosis

Cystic fibrosis is a genetically inherited disease that primarily affects a child's lungs and digestive system. Children with cystic fibrosis have a defective gene and its protein product causes the body to produce unusually thick, sticky mucus. This sticky mucus obstructs the lungs, which can lead to life-threatening lung infections, obstruct the pancreas and stop natural enzymes form helping the body break down food and absorb vital nutrients. Approximately 30,000 children and adults in the U.S. suffer from cystic fibrosis. 
 
Since cystic fibrosis care is complex, our team of clinicians administers state-of-the-art testing methods and provides clinical care that is custom-tailored to the needs of each individual child. Our patients receive thorough routine evaluations and treatment for acute and chronic problems. We deliver several unique services ranging from evaluation, diagnosis and patient education. We also offer sweat testing for the diagnosis of cystic fibrosis in addition to genetic counseling and testing. We are committed to utilizing our knowledge and skills to optimally care for your child and provide the most effective services and efficient patient care.

 

Our Medical Team

  • Marlyn Woo, MD - Program Director
  • Elaine Harrington, RN, BSN, AE-C - Pulmonary Nurse Specialist
  • Suzanne Hollander, MS, RDN - Registered Dietician Nutritionist
  • Sabah Akmal, LCSW - Pediatric Clinical Social Worker

 

Contact Us

  • Appointments & Referrals - Phone: (310) 825-0867

  • Administrative Office & Information - Phone: (310) 825-5930

  • Administrative Office - Fax: (310) 794-7338

  • Pulmonary Nurse Specialist - Elaine Harrington, RN, BSN, AE-C - Phone: (310) 267-0606

  • Email: pediatricpulmonary@mednet.ucla.edu

 

Online Resources