Can we invite a representative from a 3rd party organization such as a not-for-profit organization that offers additional services (i.e. (Y-ME, Muscular Dystrophy Association) to participate in the UCLA sponsored support group?Yes, but only if the individual and his/her organization is disclosed to all participants in advance of the meeting date or prior to the start of the meeting. . It would be prudent to have the outside representative wear a badge indicating the name of the organization during the meeting.
UCLA personnel must not share patient information before, during, or after the meeting to the 3rd party without first obtaining a patient written authorization. However, the patients may provide their own information to the 3rd party voluntarily.