Community-based Teen and Parent Programs and Resources
Camp del Corazon is a non-profit organization that provides year-round activities for children growing up and living with heart disease. A residential summer camp program for children ages 7-17 is offered yearly. Other programs include that offer opportunities for growth, education and support fourteens, young adults and the families who are living with heart disease. Once a teen reaches 18, they can continue to participate in Camp activities through their PACE program. Visit them at www.campdelcorazon.org.
The Heart Connection provides support, information and resources to families with children and teens with congenital heart defects. A series of special events, including online support groups, allows parents to exchange information and share emotional support. Visit them at www.caheartconnection.homestead.com.
The Congenital Heart Information Center (CHIN) – a web-based program that provides information for parents of children with Conge CHD. Visit them at www.tchin.org.
Adult Congenital Heart Association (ACHA) – a patient-driven membership program for adults with congenital heart disease. They provide education programs, are serve as an advocacy group for patients and their families. Visit them at www.achaheart.org.