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Kidney Transplant

Kidney Transplant

Kidney Transplant
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Kidney Transplant

For Patients

For Patients

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  4. Education & Resources

Education & Resources

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Educational Material:

What every patient needs to know: “Talking about transplantation” 

Partnering with your Transplant team: The Patient Guide to Transplantation

Q&A about a Change in Kidney Allocation Policy

Men's Health Post Kidney Transplant 

Finding a Living Donor


Web Resources:

UCLA and the United Network for Organ Sharing


Who are UNOS and the OPTN?

The United Network for Organ Sharing (UNOS) is a nonprofit organization that operates the Organ Procurement

and Transplantation Network (OPTN) under a contract from the federal government. The OPTN/UNOS continuously evaluates new advances and research, and uses this new information to improve organ transplant policies to best serve patients waiting for transplantation.

The United Network for Organ Sharing (UNOS) provides a toll-free patient services lines to help transplant candidates, recipients, and family members understand organ allocation practices and transplantation data. You may also call this number to discuss problems you may be experiencing with your transplant center or the transplantation system in general. The toll-free patient services line number is 1-888-894-6361.

Additional details about the OPTN/UNOS, allocation policy and patient information resources are available on the following website:

www.unos.org

Financial Assistance/ Fund Raising

  • Help Hope Live
    www.helphopelive.org or 1-800-642-8399
    Fundraising/ Emergency financial assistance
  • National Kidney Foundation
    www.kidney.org or 1-800-622-9010
    Resources available for kidney patients
  • National Foundation for Transplant
    www.transplants.org or 1-800-489-3863
    Fundraising
  • For Free or Low Cost Medications
    www.Needymeds.org
  • Wise & Healthy Aging
    1-855-636-7655
    Helping Seniors (50+) save money on medical, medicine, food, and utilities.
  • Benefitscheckup.org
  • To find benefit programs that can help you pay for medications, health care, food, utilities and more

Insurance Related

  • Affordable Care Act (Obama Care)
    www.coveredca.com
    Maintaining adequate health insurance is crucial to the survival of your transplant. The Affordable Care Act gives people the ability to choose the health plan that offers the best services at the greatest value for you or find out if you qualify for Medi-Cal.
  • Health Insurance Counseling and Advocacy Program (HICAP)
    www.cahealthadvocates.org/HICAP/ or 1-800-434-0222
    Provides health insurance counseling for Medicare and Private Insurance Issues
  • HIPP Program
    1-800-952-5594
    Medi-Cal pays private insurance and Medicare cost if you have no share of cost or share of cost of $200 or less
  • Medi-Cal Working Disability Program
    Maintaining Medi-cal while collecting disability income and working
    Call the benefits planner: 866-426-1132 for a live person who will help you determine which work/disability program is best for you.

Caregiver & Transportation Resources

  • In-Home Supportive Services (IHSS)
    dpss.lacounty.gov/wps/portal/dpss or 1-888-944-4477
    Helps pay for services provided to low-income elderly, blind or disabled individuals, including children, so that they can remain safely in their own home.
  • ACCESS Paratransit
    accessla.org or 1-800-827-0829
    Offers medical transportation services for the disabled. In person appointment required for eligibility
  • CityRide
    www.ladottransit.com/other/cityride/ or call 323-808-7433
    A transportation program for qualified seniors and individuals with disabilities living in the City of Los Angeles and designated areas of Los Angeles County

Other Resources

  • Renal Support Network
    www.RSNhope.org or (818) 543-0896
    Community education events, online newsletters, and weekly webcasts for dialysis and transplant patients
  • Renal Support Network HOPEline
    1-800-579-1970
    To talk to a person who has lived with kidney disease
  • Disability 101
    www.disabilitybenefits101.org
    A goldmine of information on disability, return to work, etc.
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