Here are some helpful links to agencies, organizations and documents addressing issues related to cerebral palsy for both consumers and professionals.
Mental Health/Caregiver Support
Crisis Help Lines: 24/7 365-day-a-year free and confidential crisis support services for people in need of emotional counseling and resources
Disaster Distress Helpline: 800-985-5990
National Suicide Prevention Lifeline: 800-273-8255
National Youth Crisis Hotline: 800-448-4663
TrevorLifeline (LGBTQ youth services): 1-866-488-7386
Covered California: Medi-Cal & CHIP
Medi-Cal is a program that provides health insurance to Californians with low incomes, for free or for a low cost. The plans are from name-brand insurance companies.
CHIP (Children's Health Insurance Program) provides health insurance for free or for a low cost to children whose families fall in certain income brackets. Many families are considered mixed, which means that the children qualify for Medi-Cal or CHIP and adults are insured through Covered California.?
NYC Ballet- Access workshops for teens and adults: Join the artists of New York City Ballet for a series of movement workshops designed especially for teens and adults with disabilities, live streamed on Zoom. Each one-hour workshop will be co-led by a pair of NYCB Dancers and will include a warm-up and choreography inspired by the Company’s vast repertory.Modifications and movement options will be offered throughout, and movers of all abilities are welcome. ASL interpretation and closed-captioning accommodations available for livestream events.
- 1-hour Zoom Workshops
- Tickets: $0 for livestream (advance registration required)
Adrian's Place Santa Monica- Adrian's Place is a community hub offering recreational, social and academic programs for teens and young transitional-aged adults tailored to meet their abilities.Adrian's Place is for families, friends, caregivers and professionals to come together to support loved ones who require additional support and attention.Community building, recreation, membership and socialization. Adrian's Place has grown out of our experience as parents of Adrian, a child with boundless energy who was born with Cerebral Palsy.
Mighty Underdog - The Mighty Under Dog is a team of dedicated surfers who share and understand the healing powers of ocean therapy. They host surf therapy events and provide ongoing therapy for children with social challenges, cognitive, physical, and emotional disorders, as well as autism. Most services offered in Malibu.
Life Rolls On - A non-profit 501c3 organization dedicated to improving the quality of life for people living with various disabilities. They believe that adaptive surfing and skating could inspire infinite possibilities beyond any disability. Services held in Venice Beach.
THERAsurf is a non-profit organization based out of Malibu, California, committed to the healing energy and power of the ocean. Their goal is to provide children with special needs the opportunity to benefit from that positive energy by safely getting them into the water and up on waves.
A Walk on Water serves children with special needs and their families through transformative Surf Therapy based in Malibu, California. In addition, they also offer yoga, massage therapy, art therapy, music therapy, food and drink, and many different variations of sports and play on the beach at their events.
Alyssa Vanover - Dr. Vanoever is a physical therapist that utilizes the Cuevas Medek Exercises (CME) therapy. CME therapy is a dynamic exercise manually applied to children to provide automatic motor function response. Services offered in Agoura Hills.
Challenge Athlete Foundation - It is the mission of the Challenged Athletes Foundation (CAF) to provide opportunities and support to people with physical challenges, so they can pursue active lifestyles through physical fitness and competitive athletics. The Challenged Athletes Foundation believes that involvement in sports at any level increases self-esteem, encourages independence and enhances quality of life.
CSUN Aquatic Therapeutic Exercise (Assisted Program) - Individualized aquatic activity programs for children with special needs. The program emphasizes adapted aquatic skills, water safety, balance and mobility.
The Pools of Hope - The Pools of Hope services enable those unable to participate in land-based rehabilitation and exercise activities, an opportunity to engage in health promotion and disease prevention programs in a therapeutic, injury-free environmentChildren's Rights Clinic Southwestern Law School represents youth in school discipline proceedings, youth with special needs in the IEP process where discipline or behavior is an issue, and work with community groups to advocate for better and more equitable educational opportunities for youth. The potential client must reside in Los Angeles County to be eligible and would not otherwise be able to obtain legal representation and an age range between 3 and 22.
Disability Rights California (DRC) is the agency designated under federal law to protect and advocate for the rights of Californians with disabilities.We work in litigation, legal representation, advocacy services, investigations, public policy, and provide information, advice, referral, and community outreach.For more than 40 years, DRC has worked to advance the rights of Californians with disabilities in education, employment, independence, health, and safety, and has grown into the largest disability rights organization in the nation.
Disability Rights Legal Center (DRLC) is the oldest program that provides disability rights advocacy by providing free legal assistance to people with disabilities experiencing discrimination in violation of their civil rights. The program brings high impact, high visibility cases in state and federal courts to protect and to expand the rights of this community. These cutting-edge cases raise public awareness and ensure people with disabilities are able to participate fully in society throughout their life span. DRLC’s Advocacy program also works to remove barriers to full participation by people with disabilities in schools, healthcare facilities, custodial settings and public spaces.
All Access Life: Accessibility - Empowering people with disabilities through adaptive resources. This site connects you to adaptive products, assistive technologies, adaptive apps/software, videos and more! The team at All Access Life does the research for you and neatly categorizes these adaptive resources throughout 7 categories. They also have video reviews to showcase what trending adaptive products are on the market for people with disabilities.
SNT- Special Needs Trust
A Special Needs Trust (SNT) allows for a disabled person to maintain his or her eligibility for public assistance benefits, despite having assets that would otherwise make the person ineligible for those benefits. There are two types of SNTs: First Party and Third Party funded. See link for more information.
CalABLE:
Eligible individuals may now open a CalABLE account and manage their money on this website that provides you a tax-advantaged account, easy access to your money using the CalABLE Visa® Prepaid Card,* and confidence your savings, up to $100,000, won’t affect your eligibility for programs like SSI and Medi-Cal.Sign up today for your tax-free treatment on earnings and withdrawals to pay for disability-related expenses, and let us help you dream, plan and succeed in your most ambitious goals.
Special Patient Care Clinic - The Special Patient Care Clinic, formerly known as the Hospital Dentistry Clinic, provides advanced comprehensive general dentistry for patients with severe medical, physical, and mental problems (pre and post organ transplant patients, cancer patients, immunocompromised patients, special needs patients). This clinic also provides dental services under IV sedation in an operating room setting, for patients unable to receive treatment in a routine dental setting. Dental services are also provided on an emergency basis after hours for both in-patients and out-patients.
Pediatric Dentistry Clinic - This clinic has providers that serve the oral health interests of infants and children through 12 years old. The establishment of a dental home provides an opportunity to implement individualized preventive oral health practices and reduces the child’s risk of preventable dental/oral disease, and should start no later than 12 months of age. Care is provided by residents or international trainees and the cost of care is lower than the private sector.
UCLA Health Superstar Scarlett Shares Her Surgery Experience - Scarlett is an animal-enthusiast, actress, and has had over three surgeries at UCLA Health. Listen to her talk about her experiences in the operating room and how Dr. Rachel Thompson and her UCLA Health care team make surgery less scary. *Spoiler alert: There's singing too!
Distal Femoral Extension Osteotomy.pdf
Femoral Derotational Osteotomy.pdf
Tendo-Achilles Lengthen and Tibialis Anterior Shortening.pdf
Tibial Derotational Osteotomy.pdf