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Center for Cerebral Palsy at UCLA | OIC

Center for Cerebral Palsy at UCLA | OIC

Center for Cerebral Palsy at UCLA | OIC
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Center for Cerebral Palsy at UCLA | OIC

Resources

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Resources

Here are some helpful links to agencies, organizations and documents addressing issues related to cerebral palsy for both consumers and professionals.


Consumer/Medical Information

  • California Children’s Services
  • California Institute for Regenerative Medicine (CIRM)
  • California Regional Centers
  • Current State of Stem Cell Treatments for Cerebral Palsy (PDF)
  • Reaching for the Stars
  • Tarjan Center for Developmental Disabilities at UCLA
  • UCLA Intervention Program
  • United Cerebral Palsy
  • CP Alliance  - The Australia-based organization funds cerebral palsy research in Australia and overseas through their Research Foundation. They also share the results of recently published research in the management and prevention of cerebral palsy
  • The American Academy of Cerebral Palsy and Developmental Medicine (AACPDM)  - The American Academy of Cerebral Palsy and Developmental Medicine is over 1,100 health professionals dedicated to providing multidisciplinary scientific education and promoting excellence in research and services for the benefit of people with and at risk for cerebral palsy and other childhood-onset disabilities. AACPDM Fact Sheets
  • Cerebral Palsy Foundation (CPF) - CPF is the largest non-government funder of cerebral palsy research in the United States. It collaborates with scientists and researchers throughout the world in cerebral palsy and shares the work with others so that it may have the greatest impact
  • Red Star Riders  - This non-profit organization was founded by pediatric physical therapists to help create mobility and independence for physically and developmentally challenged children in the greater Los Angeles area
  • CPNow, is a consumer organization that offers a free “CP Toolkit”, and an informational booklet for parents or loved ones of children with cerebral palsy.
  • Voice Option Program - the California Department of Rehabilitation, in its mission to provide services and advocacy for independent living for individuals with disabilities, can provide a free speech-generating device to Californians who are unable to speak or who have difficulty speaking. They offer three partnership programs. Please see the flyer for details.
  • Dating with CP - student in Californai State University at Dominguez Hills' Occupational Therapy program are conducting a study into investigate the experiences of adults with CP in the dating world. Adults with CP between the ages of 18 and 40 years are eligible. Please see the flyer for details.

Recreation/Fitness Resources

  • Adaptive Tricycles A brief guide of features and considerations for children with CP
  • Casa Colina Outdoor Adventures – a program that focuses on empowering people with disabilities by creating opportunities through challenging and exciting activities
  • Exercise and Recreation Resources in the Los Angeles area
  • Inclusive Fitness Coalition - a cross-section of the disability rights, sports, health/fitness and civil rights communities dedicated to promoting equitable access to, and safe use of, fitness and recreational equipment, facilities, and programs
  • National Center on Health, Physical Activity and Disability - links to ongoing program fitness and exercise initiatives across the nation. Includes items on health promotion and nutrition, research and videos of adaptive sports, recreation and access
  • Special Olympics
  • How Do I Become a Paralympian-2017
  • US Adaptive Recreation Center
  • UCLA Adaptive Recreation Program
  • Angel City Sports  (2020 virtual games flyer)

Equipment/Clothing

  • ABLDenim - jeans for children and adults with physical disabilities, also offers tailoring services to adapt clothing to individual physical needs
  • Adaptive Mall  - a catalogue of adaptive cycles and other equipment for people with disabilities
  • Hatchbacks - specialized sneakers and shoes for children that are easier to put on and take off, with or without AFOs
  • Keeping Pace/Advanced Orthotic Design - shoes for children and adults with AFOs or adaptive footwear
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