Here are some helpful links to agencies, organizations and documents addressing issues related to cerebral palsy for both consumers and professionals.
Mental Health/Caregiver Support
- Role of the Parent- Families Impacted by CP (video from Cerebral Palsy Foundation)
- UCLA Behavioral Health Associates- Behavioral Health Associates (BHA) is a clinic designed to support your emotional well-being so that you can thrive. BHA works in partnership with your UCLA primary care provider and together, we are your UCLA team for overall health
- Didi Hirsch- Didi Hirsch’s experts provide evidence-based treatment to low-income children and adults with mental disorders or behavioral challenges
- DMH- The Los Angeles County Department of Mental Health (LACDMH), the largest county mental health department in the country, directly operates more than 80 programs and contracts with more than 700 providers, including non-governmental agencies and individual practitioners who provide a spectrum of mental health services to people of all ages to support hope, wellness and recover
- HelpGuide - is a small independent nonprofit that runs one of the world’s top 10 mental health websites
- The Help Group- Founded in 1975, The Help Group is the largest, most innovative and comprehensive nonprofit of its kind in the United States serving children, adolescents and young adults with special needs related to autism spectrum disorder, learning disabilities, ADHD, developmental delays, abuse and emotional challenges
- UCLA PEERS-The Program for the Education and Enrichment of Relational Skills (PEERS®) is world-renowned for providing evidence-based social skills treatment to preschoolers, adolescents, and young adults with autism spectrum disorder (ASD), attention deficit/hyperactivity disorder (ADHD), anxiety, depression, and other socio-emotional problems
- Mental Health America-The following resources can be used to help you find mental health treatment services, including affordable treatment for those without insurance, in your community
Crisis Help Lines: 24/7 365-day-a-year free and confidential crisis support services for people in need of emotional counseling and resources
Disaster Distress Helpline: 800-985-5990
National Suicide Prevention Lifeline: 800-273-8255
National Youth Crisis Hotline: 800-448-4663
TrevorLifeline (LGBTQ youth services): 1-866-488-7386
- For kids with cerebral palsy, removing anxiety from trips to the doctor - The Surgical Preparedness Program at UCLA Health eases anxiety and improves outcomes for children with cerebral palsy.
Consumer/Medical Information
Recreation/Fitness Resources
- Adaptive Tricycles A brief guide of features and considerations for children with CP
- Casa Colina Outdoor Adventures – a program that focuses on empowering people with disabilities by creating opportunities through challenging and exciting activities
- Exercise and Recreation Resources in the Los Angeles area
- Inclusive Fitness Coalition – a cross-section of the disability rights, sports, health/fitness and civil rights communities dedicated to promoting equitable access to, and safe use of, fitness and recreational equipment, facilities, and programs
- National Center on Health, Physical Activity and Disability – links to ongoing program fitness and exercise initiatives across the nation. Includes items on health promotion and nutrition, research and videos of adaptive sports, recreation and access
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NYC Ballet- Access workshops for teens and adults: Join us for this three-week series of movement workshops exploring the work of George Balanchine, Justin Peck, and Jerome Robbins. Each week a pair of NYCB dancers will co-lead viewers in a warm-up and choreography, demonstrating both standing and seated movement options. Movers of all abilities are welcome.
Thursdays at 6 PM EDT
1-hour Zoom Workshops
Tickets: $0 for livestream (advance registration required)
- Special Olympics
- How Do I Become a Paralympian-2017
- US Adaptive Recreation Center
- UCLA Adaptive Recreation Program
- Angel City Sports
- Staying Driven-CPR- fitness for teens and adults. Staying Driven is a virtual adaptive fitness program founded by Stephanie “the Hammer” Roach. An adult with CP and a former CrossFit trainer and gym owner, Steph shifted her business during the pandemic to virtual classes for people with disabilities. She and her staff of adaptive fitness trainers offer multiple classes a week for people with disabilities.The CP Research Network has arranged for MyCP members to be able to attend up to two classes per week, free of charge.
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Adrian's Place Santa Monica- Adrian's Place is a community hub offering recreational, social and academic programs for teens and young transitional-aged adults tailored to meet their abilities.Adrian's Place is for families, friends, caregivers and professionals to come together to support loved ones who require additional support and attention.Community building, recreation, membership and socialization. Adrian's Place has grown out of our experience as parents of Adrian, a child with boundless energy who was born with Cerebral Palsy.
- Infinite Flow Dance Company – Established in 2015, Infinite Flow is an award-winning Los Angeles-based nonprofit and professional dance company composed of dancers with and without disabilities. Infinite Flow's mission is to dismantle biases, promote inclusion, celebrate intersectionality, and encourage people to learn something new about themselves and the world around them.
- SoCal Trykers The SoCal Trykers is a 501(c)(3) non-profit founded in 2013 by a group of physical therapists and their families and friends. Their mission is simple, to help as many children and adults as they could acquire adapted tricycles. Both physical and occupational therapists acknowledge the AmTryke tricycle's many therapeutic benefits, citing improved motor skills, strength development and self-esteem. Follow link above for more information on the application process and next steps on how to request a AmTryke Therapeutic Tricycle.
Equipment/Clothing/Adaptive Resources
- ABLDenim - jeans for children and adults with physical disabilities, also offers tailoring services to adapt clothing to individual physical needs
- Adaptive Mall - a catalogue of adaptive cycles and other equipment for people with disabilities
- Hatchbacks - specialized sneakers and shoes for children that are easier to put on and take off, with or without AFOs
- Keeping Pace/Advanced Orthotic Design - shoes for children and adults with AFOs or adaptive footwear
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All Access Life: Accessibility - Empowering people with disabilities through adaptive resources. This site connects you to adaptive products, assistive technologies, adaptive apps/software, videos and more! The team at All Access Life does the research for you and neatly categorizes these adaptive resources throughout 7 categories. They also have video reviews to showcase what trending adaptive products are on the market for people with disabilities.
