Open
Actively Recruiting
Genetic Predisposition Testing Program for Pancreatic Neuroendocrine Neoplasms
About
Brief Summary
This is a prospective observational multi-center pilot study of germline testing for participants receiving care at University of California participating locations with a new or existing diagnosis of Pancreatic Neuroendocrine Neoplasms (PanNEN). This protocol is an extension of existing Genetic Testing Station efforts at University of California, San Francisco (UCSF)
Study Type
Phase
Eligibility
Gender
Minimum Age
Maximum Age
Inclusion Criteria:
- Histologically confirmed PanNEN.
- New and existing PanNEN participants will be eligible for testing (any grade, any stage, any age > 18 years).
- Participants willing and able to comply with the study procedures.
Exclusion Criteria:
- Inability to provide informed consent.
- For participants without adequate prior germline testing: Inability to speak/read the languages supported by the genetic testing station (GTS) --This is evolving, but currently includes English, Spanish, Farsi, Russian, or with Chinese subtitles (see most recent version of the consent for updated list).
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Study Stats
Protocol No.
23-001465
Category
Pancreatic Cancer
Principal Investigator
Location
- UCLA Santa Monica