Find your care
Further VHL information can be found at:
- Video about VHL disease. Dr. Brian Shuch, director of the UCLA Kidney Cancer and VHL Programs, presents “Clinical Characteristics and Patient Pathways for VHL Disease."
- The VHL Alliance is dedicated to supporting patients, families, and caregivers affected by von Hippel Lindau disease (VHL), and serves as a resource for patients, caregivers, researchers, and the medical community.
- The National Cancer Institute Von Hippel-Lindau Disease (PDQ®) website. This PDQ cancer information summary for health professionals is written by Dr. Brian Shuch and colleagues and provides comprehensive, peer-reviewed, evidence-based information about the genetics of von Hippel-Lindau disease. It is intended as a resource to inform and assist clinicians in the care of their patients. It does not provide formal guidelines or recommendations for making health care decisions.
- Cancer.net VHL website. This is an American Society of Clinical Oncology (ASCO) run website with educational content for patients. This information is updated by Dr. Brian Shuch and reviewed by other members of the Genitourinary Editorial board.