ADPKD (Autosomal Dominant Polycystic Kidney Disease)

                    CORE Kidney PKD Center of Excellence at UCLA Health

.                                                                PKD Foundation  Center of Excellence

Polycystic kidney disease (PKD) is one of the most common inherited kidney conditions, affecting individuals and often several generations of a family. The PKD Program at CORE Kidney at UCLA Health is a PKD Foundation–certified Center of Excellence, a recognition given to programs that demonstrate excellence in diagnosing, treating, educating, and researching PKD.

Our program provides comprehensive, multidisciplinary care for children and adults with PKD and their families — including both autosomal dominant PKD (ADPKD) and autosomal recessive PKD (ARPKD) — from infancy and childhood through adulthood.

Leadership

The program is led by Anjay Rastogi, MD, PhD, Professor and Clinical Chief of Nephrology at the David Geffen School of Medicine at UCLA and founder of CORE Kidney at UCLA Health. Under his leadership, the program brings together experts across UCLA Health to deliver coordinated care tailored to each patient and family.

Our team includes specialists in nephrology, genetics, cardiology, radiology and interventional radiology, hepatology, and neurosurgery. When needed, we refer patients to transplant specialists, urologic surgeons, dietitians, and psychologists well versed in PKD.

Our Approach

PKD affects more than the kidneys. It can involve the liver, heart, blood vessels, and brain, and it can shape decisions about family planning and long-term health. Our team looks at the whole person, with care plans that address kidney function and disease progression, blood pressure, symptoms such as pain, emotional well-being, and what the diagnosis means for relatives.

Why Choose the PKD Program at UCLA Health?

• Comprehensive care from a dedicated, multidisciplinary PKD team

• Care across the lifespan, from prenatal consultation through childhood, adolescence, and adulthood

• Timely appointments, in person and by telehealth

• Seamless access to other UCLA Health specialties when needed, including oncology, gastroenterology, rheumatology, dermatology, pulmonology, and infectious diseases

• Care across UCLA Health nephrology locations, including Ronald Reagan UCLA Medical Center, UCLA Santa Monica Medical Center, and UCLA West Valley Medical Center

• Referral to one of the nation's leading kidney transplant programs, with a team well versed in PKD, offering preemptive transplantation, paired kidney exchange, and donor voucher opportunities

• Minimally invasive interventional radiology procedures to relieve symptoms and treat complications, often as an alternative to surgery

• Referrals to dietitians and psychologists well versed in PKD, plus kidney educators and peer support programs

• Opportunities to take part in clinical trials of promising new therapies

• A program that trains future healthcare leaders through mentorship and community engagement

Who Should Contact Us

• Adults and children diagnosed with PKD or suspected of having it

• Expectant parents whose baby may have PKD based on prenatal imaging

• Family members of someone with PKD who want screening or genetic counseling

• Patients seeking a second opinion

• Patients interested in clinical trials

• Physicians seeking specialized care or co-management for their patients

Contact Us

For appointments, referrals, or information about current clinical trials:

Email: [email protected]

Phone: (310) 794-5023