CORE Kidney

ADPKD (Autosomal Dominant Polycystic Kidney Disease)

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PKD Foundation Centers of Excellence (COE) program

The PKD Foundation Centers of Excellence (COE) program is built upon the belief that the best way to provide ADPKD-centered care is through patient-focused, comprehensive care with the coordination and support of an integrated care team. The program’s mission stands on three pillars: understanding PKD through research, ensuring better care for all individuals with ADPKD, and educating and empowering the community. Since our founding in 2013, we have built and developed one of the most extensive PKD programs globally, providing care and support to patients from all corners of the world. We work very closely with other sub-specialties to ensure true coordination of care. Below are some key components of our PKD program:

  1. A dedicated team with clinic appointments offered within a very reasonable timeframe – appointments are offered both in-person and via telemedicine.
  2. Sub-specialties offered – genetics, hepatology, radiology, cardiology, neurosurgery, transplant, dialysis, reproductive endocrinology, pain management, pediatrics, and psychiatry.
  3. Supportive services – support groups, dietitians, psychologists, and kidney educators.
  4. All specialties are available, if needed, including oncology, gastroenterology, rheumatology, dermatology, pulmonology and infectious diseases.
  5. Two dedicated hospitals – Ronald Reagan UCLA Medical Center and UCLA Santa Monica Hospital.
  6. One of the country's top kidney transplant programs focusing on preemptive transplant, paired exchange, and donor voucher programs.
  7. One of the top research institutions across basic science, translational, and clinical research with collaboration among different specialties.
  8. Multiple programs offer free education programming and events across different platforms.

Our program is committed to ongoing research and new clinical studies, including basic science, applied clinical science, outcomes, and evidence-based research in the mission to develop new treatments and cures for polycystic kidney disease. We strive to provide the highest quality of patient care, perform cutting-edge research, and educate patients and healthcare professionals about the latest advances and updates in PKD.

For information about current clinical trials, please contact us.

Email: [email protected]

Phone: 310-794-5023

Associate Director

Physicians

Ramon Durazo, MD

Ramon A. Durazo, MD

Nephrology

Location:

200 UCLA Medical Plaza, Suite 365-B

Los Angeles, CA 90095

(310) 794-5023: Call for appointments and information

(310) 474-0725: Fax number

[email protected]: Email with questions pertaining to PKD

Additional Resources

PKD Webinar presented by Dr. Anjay Rastogi, Director of the UCLA PKD Program

Symposium: Frontiers in Autosomal Dominant Polycystic Kidney Disease (ADPKD)

A Practical Guide for Treatment of Rapidly Progressive ADPKD with Tolvaptan

Autosomal Dominant Polycystic Kidney Disease: Updated Perspectives

Advances in Autosomal Polycystic Kidney Disease: A Clinical Review

Establishing a Core Outcome Set for Autosomal Dominant Polycystic Kidney Disease: Report of the Standardized Outcomes in Nephrology-Polycystic Kidney Disease (SONG-PKD) Consensus Workshop

Autosomal Dominant Polycystic Kidney Disease

High Blood Pressure: What You Should Know

Drugs and Medications: What You Should Know

Learn how you can support the Kidney Disease Research Fund

Disclaimer: The UCLA Health System cannot guarantee the accuracy of such information. The information is provided without warranty or guarantee of any kind. Please speak to your Physician before making any changes. 

Contributors:

  1. Member of the Bruin Beans Health Club | Anaya Sayal, UCLA Undergraduate Student
  2. Member of the Bruin Beans Health Club | Zachary Sim, UCLA Undergraduate Student
  3. CORE Kidney Research Associate | Lewis Simon, MPH, PhD