Endocrine Resources

Nationally-Based Professional and Governmental Organizations:

MedlinePlus is a site offered by the U.S. National Library of Medicine and the National Institutes of Health.

 

It is continuously updated and organized to provide useful and readable information to health professionals and patients alike. Users may search by health topic, access an illustrated medical encyclopedia, and browse a large selection of highly educational interactive tutorials.
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• The American Thyroid Association – www.thyroid.org
  
  
• The American Association of Clinical Endocrinologists – www.aace.com
• The American Association of Endocrine Surgeons

• Position statement regarding treatment of primary hyperparathyroidism (2005) http://www.endocrinesurgery.org
• The National Institutes of Health – www.nih.gov
  • Endocrine system health information page
    http://health.nih.gov/category/EndocrineSystemHormones
  • 1990 NIH Consensus Development Statement on Primary Hyperparathyroidism
    AsymptomaticHyperparathyroidisim082html.htm
  • 2002 NIH-sponsored Consensus Panel Summary Statement on Primary Hyperparathyroidism (available from The Endocrine Society)
    https://academic.oup.com/jcem/article-lookup/doi/10.1210/jc.2002-021370
  • 2002 NIH Consensus Development Statement on Clinically Inapparent Adrenal Masses (Incidentalomas)
• The National Cancer Institute – www.cancer.gov
  • Information on thyroid cancer
    http://www.cancer.gov/cancertopics/pdq/treatment/thyroid/patient
• The National Kidney Foundation – www.kidney.org
  • Guidelines for management of bone disease and hyperparathyroidism in patients with chronic kidney disease
    http://www.kidney.org/professionals/kdoqi/guidelines.cfm

Patient-Driven Organizations:

• Adrenocortical Carcinoma Reference Information
  • http://www.adrenalcancersupport.org/
• The Light of Life Foundation is a organization for Thyroid Cancer Support
  • http://www.checkyourneck.com
• Thyroid Cancer Survivor’s Association, Inc.
  • http://www.thyca.org
• VHL Family Alliance
  • Dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by Von Hippel-Lindau disease.
    http://www.vhl.org/
• Young Adult Cancer Survivors, Washington DC.
  • A site and community founded by one of our patients, herself a thyroid cancer survivor.

Institute for Clinical Systems Improvement:

• https://www.icsi.org/

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